Meeting with Neurologist

Today Mike and I meet with Dr DeGrauw for Madison's followup appointment. It was a good meeting and you always learn something new. At this appointment we learned the a child's mylin (fatty tissue that surrounds the brain) grows rapidly about 75% in the first year of life and in the second year of life the remaining 25% finishes...so with that being said, Madison's last MRI showed that her mylin was at about a 16-18th progression so we thought that she would be getting an MRI done next month but as it turns out he wants to wait another YEAR so we will continue to pray that her brain/body heals itself and we will return to Cincinnati Children's for her 4th MRI in Oct 2009. We also found out that her difficult sleeping is due to the apraxia/low tone so we can give her Melatonin on a daily basis...hopefully, her 3-4x a night of waking is reduced to 0 or 1x a night....We will be running a celiac disease panel on her next month. We are wondering if her little body has any intolerances to gulten and caesin. Lastly, we have put Madison on Depakote (epiletic medication)....somehow the last time we left the office we weren't under the impression that Depakote prevents febrile seizures....this visit we were...so after much debate, research and prayer we have decided to put her on Depakote and monitor her liver function....we are hoping by the time she turns 5 she grows out of the febrile seizure disorder....keep your fingers crossed!!!!