Friday, March 9, 2012

A new normal

Ok...coming up for water. So we are now a little over a week since Madison has was released from the hospital. It is amazing to see the progress that she has made on a daily basis. She returned to school on Tuesday and if you didn't know that she had had a major seizure she looked like herself. However, she is still a bit unsteady on the stairs. Madison is walking, talking better, running, feeding herself and back in big girl undies. Unfortunately, we are not sure if cognitively she was affected but only time will tell; right now the therapists are hopeful. Generally, speaking she seems to be unaffected by what happened. I however, am still trying to remember to breath. It crazy to think how laxes we had become with carrying around her meds and taking for granting what she was capable of.....after this last seizure and hospitalization the reality of not knowing WHY this is happening again HITS HARD.....and it sucks not being able to fix I have to pull myself up and out of bed and find the doctors that will listen and the insurance company to pay for the stuff she needs and remember to breath....all the while trying not to blame yourself for the affect this is all having on our other two kids. At least it seems everyone is back to normal....whatever normal is or at least the Landers normal.

So begins the journey of trying to decide what meds she should be on, for how long and are they having more of a positive long term affect or a negative one....ugh...wish I had that crystal ball.

Thursday, March 1, 2012

Seizure number 7

Quick overview....on Feb 27 Madison somehow spiked a fever and had a seizure while at therapy. I was able to get her medication in her system and the EMS team provided more medication while she was in transport to the hospital. Unfortunately, the seizure lasted close to an hour, stopped and then she intermitantly seized for 4 additional hours. She was intubated and was put in the ICU. Cat scan normal, EEG inconlusive due to the amount of meds in her system. Doctors have no reason for why this has happened again. This week Madison would have been 3 years seizure free and 8 months medication free. On a side note Viva did not go to school that day because she had gotten sick early Monday morning and I didn't want the teacher to have to take care of a possible sick dog. While Viva was at the therapy place she was not in the room with no alerting took place.....BUT she did ride in the ambulance, was in the ER, went to the CAT scan, stayed in Madison's ICU room and generally never left the hospital. She was amazing....doctors and nurses could not believe how well behaved she was....and she gave mommy and daddy support too!