Hi everyone -- good news....so far these are the test results that have come back.....
blood sugars -- good
liver -- good
febrile seizure plus -- NEGATIVE -- which is good
sleep deprived EEG -- good...lots of twitching activity but NORMAL....apparently due to Madison low tone...and the fact that she works so hard daily her muscles will twitch more than normal
MRI -- good....and CONFIRMED that she does have delayed mylination....so 3rd opinion is a charm....waiting on the other mitchocondria blood work to return....to include the ALPERs test....
We are both hoping that that too will come back normal/negative....we truly believe the seizures just threw her little body into a tizzy...and with the proper early intervention...to include more speech...she will develop on that "normal" route...
We also just got a phone call (2 days ago) that she does qualify for the Kauffman method...so I am driving to MI next week for that evaluation...a bit of money out of our pocket...but if it helps Madison to speak then it is all worth it!
A BIG THANK YOU TO EVERYONE WHO CONTINUES TO PRAY FOR MADISON!
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