Hi All -- Where do I start this one at???
Madison had her 5th seizure on Monday morning...bright and early at 2:47am....thankfully, we are STILL on base...so the ambulance was to our house within two minutes of the phone call and were aware of us being on the base so that was nice to have EMTs who were prepped....I gave her the seizure medication at home and the first tremor was stopped within 5 minutes....with a fever of 102ish....got loaded on the ambulance and the 2nd and 3rd tremor started (with a temperature of 105)....at which the EMTs were able to administer nasal anti-seizure med via the nose (new meds to me)....so we got to Dayton Children's Hospital....and were eventually admitted for the day....Madison has not been feeling well lately so I have taken her to the ER once and had 2 doctors appointments....all of which have resulted in she has a viral infection....just keep and eye on her.....fevers and all.....but no seizures activity until now....so frustrating we had gone 8 months without one.....we actually had a neurology appt on Monday too!
SO -- the neurologists on the floor was your classic case of no bedside manner and basically told us that she is not having the "simple" febrile seizures but complex ones, which means that he believes that there is a REASON for the seizures -- he also stated that the 3 separate seizures I thought she had that morning where ONE incident lasting 20 minutes or so...so she was sent for another EEG...this time awake and which again resulted in normal results....trying holding onto a 2 year in a mummy contraption with 30 something sticky buttons stuck on her head and wrapped like a toothache....some kinda fun, let me tell you....
Now he has to determine if Madison's previous testing, and blood work are enough....then we will see him in 3 weeks to talk over what he thinks needs to happen next....he alluded to putting her on epileptic medication....which at this point makes me very scared too do...at the same time Madison is obviously suffering from something...she has had a fever now (on and off) for over 3 weeks...and three days ago developed these blisters all over her tongue and throat....cries when she tries to eat...so frustrating....a nurse at the hospital suggested we take her to an infectious disease control doctor....so we are going to look into that....
Prior to this seizure Madison was making so much progress too...riding a tricycle, walking up stairs, and taking off her pants.....she also said Waa, Waa for water and pig the night before....it has taken her
GOOD NEWS -- we closed on our house on Thursday....signed our lives away....we move in next Weds after the carpets get cleaned.....lots of space to live....but also a long "to-do" list too!
Finally, got Zachary enrolled in a pre-school....he can't wait to start school....Ash is turning 13 in a few days....a teenager to contend with!!!!
Lastly, Mike and I signed up to participate in the 10K portion of USAF marathon race in Sept......I was also able to get my dad to try his hand in the 5K.....
Ok....enough rambling for now but wanted to let everyone know how we were doing....
Madison had her 5th seizure on Monday morning...bright and early at 2:47am....thankfully, we are STILL on base...so the ambulance was to our house within two minutes of the phone call and were aware of us being on the base so that was nice to have EMTs who were prepped....I gave her the seizure medication at home and the first tremor was stopped within 5 minutes....with a fever of 102ish....got loaded on the ambulance and the 2nd and 3rd tremor started (with a temperature of 105)....at which the EMTs were able to administer nasal anti-seizure med via the nose (new meds to me)....so we got to Dayton Children's Hospital....and were eventually admitted for the day....Madison has not been feeling well lately so I have taken her to the ER once and had 2 doctors appointments....all of which have resulted in she has a viral infection....just keep and eye on her.....fevers and all.....but no seizures activity until now....so frustrating we had gone 8 months without one.....we actually had a neurology appt on Monday too!
SO -- the neurologists on the floor was your classic case of no bedside manner and basically told us that she is not having the "simple" febrile seizures but complex ones, which means that he believes that there is a REASON for the seizures -- he also stated that the 3 separate seizures I thought she had that morning where ONE incident lasting 20 minutes or so...so she was sent for another EEG...this time awake and which again resulted in normal results....trying holding onto a 2 year in a mummy contraption with 30 something sticky buttons stuck on her head and wrapped like a toothache....some kinda fun, let me tell you....
Now he has to determine if Madison's previous testing, and blood work are enough....then we will see him in 3 weeks to talk over what he thinks needs to happen next....he alluded to putting her on epileptic medication....which at this point makes me very scared too do...at the same time Madison is obviously suffering from something...she has had a fever now (on and off) for over 3 weeks...and three days ago developed these blisters all over her tongue and throat....cries when she tries to eat...so frustrating....a nurse at the hospital suggested we take her to an infectious disease control doctor....so we are going to look into that....
Prior to this seizure Madison was making so much progress too...riding a tricycle, walking up stairs, and taking off her pants.....she also said Waa, Waa for water and pig the night before....it has taken her
GOOD NEWS -- we closed on our house on Thursday....signed our lives away....we move in next Weds after the carpets get cleaned.....lots of space to live....but also a long "to-do" list too!
Finally, got Zachary enrolled in a pre-school....he can't wait to start school....Ash is turning 13 in a few days....a teenager to contend with!!!!Lastly, Mike and I signed up to participate in the 10K portion of USAF marathon race in Sept......I was also able to get my dad to try his hand in the 5K.....
Ok....enough rambling for now but wanted to let everyone know how we were doing....
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